Journal

The Support I Needed (And Didn’t Know How to Ask For) Before I received this type of support, I didn’t know how to articulate what I really needed from those closest to me. It was support without pity. I hated being pitied, but I also didn’t want my struggles to be ignored or brushed aside; I wanted a balance. I …

And what I plan to do differently in 2026 and beyond 2025 has been a real year of change for me. Good change and not-so-good change. Some challenges have forced me to start doing things a bit differently. And there have also been some lovely things I’m very grateful for. Support that matters the most One of those lovely things …

That’s what it means to become disabled. It doesn’t matter how quickly it happens. Whether you become disabled overnight in an accident or you spend years slowly declining. There always comes a moment when it hits you really hard: the person you identified as, that you had imagined to become; that identity just gets pulled from under your feet and, …

July is my anniversary month. It’s been five years since my diagnosis. Five years in. Let that sink in. Crazy really. Some days it feels like I’m only at the start of this mad playground ride. So? How am I? How am I doing? On the surface, I’m ok. I’m working full time, I go to the gym, I cook …

As I have done in previous years, I like to spend January pondering on a word to focus on in the year ahead. I love the New Year and feeling like having a clean slate to rethink and refocus. In reality, of course, New Year’s resolutions can be just another way of adding to our ever-growing mountain of pressure we …

How are we already at the end of February?? It was New Year a minute ago?? 2020 started with a bit of an uphill scramble for me Initially, my eyes were still giving me trouble but my second ophthalmologist appointment showed nothing once again. He told me that there is nothing wrong with my eyes. A relief to not have …

Had a neurologist appointment today about my eye. Eye is no better, I’m afraid. Earlier in the week, I thought it had improved but whatever that was, it didn’t last. Back to annoying fuzz 🙁 My neuro had spoken to the eye clinic and also discussed it separately with a neuro-ophthalmologist. They all think that this is not a problem …