Multiple Sclerosis

Why me?

4th May 2017
why me

This post was supposed to be about my progress on strengthening my hips and core and working towards my running goal. I look like I might have to take a step back though.

These last two weeks have not gone to plan. My limping has gotten a little worse, people are commenting on it now. My foot is a different type of numb. It’s like my muscles are numb and I cannot seem to tense them when I want. It rather feels like my foot is just dangling at the bottom of my leg.

I have been completely wiped out. I go to bed early every night and still it doesn’t seem enough. After the school run in the morning, I could easily go right back to bed.

Last weekend I had some sort of stomach bug which I still don’t believe as the pain was so horrendous and I am still feeling randomly sick without being able to bring anything up. Time will tell with that one I guess.

The long and short of it: I think we may be dealing with another relapse. My therapy hasn’t kicked in yet and so this is quite feasible. I had an MRI over Easter so in a good way, I will probably find out if there are indeed new lesions or if this is just a flare.

This is my update. Now to the part that I actually need to write about.

It’s the question that I often ask myself when things are bad. It can be just a brief moment or I can spend all day mulling over it. And yes, it’s completely and utterly feeling sorry for myself. But this is a process I feel I need to go through. The question: WHY ME?

There are so many thoughts going through my head all the time. And as I mentioned before, most are positive. But not always. We can’t always be positive. It’s not possible and it’s not healthy. To deal with the c**p that life throws at us, we need to also be able to wallow.

The problem with MS is, that’s it’s so final and so uncertain.

There is no cure at the moment. Research is looking positive, there may be one in my lifetime but right now there is none. I’m stuck with it. Making this worse is the fact that nobody can tell me how mine will pan out. Will it stay this way, frustrating but manageable? Will it get worse? How worse? Will I need a wheelchair one day? Will I ever lose my sight? Will the numbness in my fingers ever go away? How will my husband cope? How will my son cope? Could my son ever get it? Will I need to give up work? How will our finances cope with that?

In a blink of an eye, my life changed, without warning and seemingly forever. Nobody in my family has it. Not even any of my close friends. So WHY ME? What did I do?

I go through stages of grief and anger. I grieve the former me, the stuff I took for granted, the decision not to have any more kids. I’m angry and resentful about the things I might never do again. So much time seemingly wasted. I rewind to what I could have done differently. I just want to wake up and it was all a bad dream.

I want to scream at people who complain about being tired, who worry about getting old or moan about some “temporary” ailment. They will get better! They will sleep and wake up feeling refreshed! They may get older than me! Of course, this has taught me, that they don’t always and I know, now more than ever, everyone fights their own battle and it may not be visible. I won’t judge people anymore for being slow. I’m the slow one now. But I can’t help that resentful thought popping into my head at the time, how they are moaning over nothing!

It’s bitterness that occupies my mind on bad days. It just moves in and makes itself comfy. I have to learn that stuff will pass. The bad day will have good bits and it can even turn into a good day in a flash. But when I’m in the mist, it’s so thick, I simply forget that it will probably lift.

I will post a note on my mirror to remind me: “This too shall pass”.

Thank you for reading. I feel better for writing it. And thank you all, you know who you are, for being so incredibly supportive.

frau naish

Total Chill-out Weekend at Sumners Ponds, West Sussex
Our day at the British Wildlife Centre

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  • Reply Amanda 4th May 2017 at 17:26

    I’m so sorry that you’re having to deal with all of this! I know that, “Why me?” and resentful feeling so well, and it is incredibly hard to bear. But you are right, we have to allow ourselves to feel this way, to let it out, and I’m glad that you’re feeling a bit better having shared how you feel right now xx

    • Reply Kat 4th May 2017 at 18:44

      Yes! It’s all part of the process! And I suppose we will go up and down all the time and these moments will come and go. Thanks for reading!

  • Reply trippingthroughtreacle 4th May 2017 at 20:43

    I definitely know how you feel and I also definitely agree that these thoughts will come and go. I find that one day I feel great and positive, the next really down, and there is always a bit at the back of my mind asking ‘why me?’ and resenting ‘healthy’ people. Of course, like you said, we never really know what others are going through. Just wanted you to know that you aren’t alone xx

    • Reply Kat 4th May 2017 at 20:45

      Thank you!!

  • Reply em 16th December 2017 at 13:07

    I;ve had MS for 14 years, using a wheelchair for 3. I still get bitter and very angry some days… just less tha I used to. But I think it would be weird if we weren’t angry about it x

    • Reply Kat 19th December 2017 at 20:50

      I guess, it’s like mourning the old, carefree people we might have been once. And kicking ourselves for not realising how good we had it and how much time we wasted not recognising xxx

  • Reply dinosaursdonkeysandms 4th January 2018 at 16:06

    Great post. I use to get the feelings of ‘why me’ all the time. No one in my family or anyone I knew had MS and it just came out of nowhere. I still sometimes feel grief and anger though. The uncertainty is the worst and I do find I’m abit less sympathic when people are tired or have colds now. I always think they’ll be better in a week, but then I feel guilty for thinking it! Thank you for sharing such an honest post. 🙂 xxx

    • Reply Kat 4th January 2018 at 16:10

      Yes! This! I had to bite my tongue when someone moaned about waking up with a numb arm. Try doing that for 18 months, I thought! But I didn’t say it because I was like them before all this.

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